The Special Education Process: The Real Truth

The Special Education Process: The Real Truth

Do you suspect your child is dyslexic? Ready to find out so we can get he or she the much-needed intervention and accommodations for success? Buckle in because it is time to take a ride on the Special Education Process EXPRESS! Many parents avoid buying their tickets, but there is nothing to fear! Not only do they have HUGE federal protections on this ride, but it isn’t scary once you understand where you are going and how we are getting there!

This is my specialty area. Before becoming a Certified Academic Language Therapist, I accrued too many years of experience in the public schools in special education as a both a teacher/specialist and campus coordinator. I taught most every classroom from Life Skills and Autism units to Resource and spent hours on the OTHER side of the tables in copious ARD meetings. You can say I have perspective. Now, I am so fortunate on having this experience to help coach parents on what to do on THEIR side of the table.

Now let’s START with a small snippet about whether or not this dyslexia diagnosis should fall under 504 or Special Education. This is enough for an entire BLOG entry in itself, so just take my word that it needs to be Special Education. Period. Do not allow your school to try and pursue dyslexia testing via 504. Trust me on this one. Your rights and the rights of your child are at stake.

So, this brings us BACK to Special Education. If you are concerned about your child having dyslexia, you will need to march your little booty into the school and request, in writing, that the school does a Full Individual Evaluation (F.I.E.) because you are concerned, specifically, about dyslexia. Also, I forgot to mention to start taking notes because, like any good bureaucratic system, there are a TON of acronyms AND timelines. For good measure, I would either hand that letter or send that email directly to the principal to make sure it is done. This is not a “mention it to the teacher” type of situation. Just you know, as soon as your John Handcock hits the official request letter, the school officially has 15 days to provide you a written consent for the evaluation. Another signature needed. They also must then give you a big packet of papers that you will likely throw in a pile of “Ill read laters”. Just a heads up, that is a bunch of legalese telling you your rights.

Just remember this combo of numbers: 15 – 45 – 30. They have 15 SCHOOL days to get your signature of consent for testing, 45 SCHOOL days to COMPLETE that testing, and then 30 CALENDAR days after completing the evaluation to hold the ARD Meeting to review the results with you. I told you…more acronyms…. ARD stands for Admission, Review, and Dismissal and it is what we call all the Special Education Meetings. Oh…and you need at least 7 days written notice before that meeting happens.

Fast forward to as many as 93 calendar days, assuming no major bank or school holidays fall in there which would make it even more, you will find yourself in that ARD meeting waiting for your child to either be admitted into Special Education and an I.E.P. being created or not. More letters…. An I.E.P. stands for Individual Education Plan.

What does that ARD meeting look like? At a minimum, it looks like parents, administrators, evaluator, special education representation, and all professionals who typically work with your child in attendance. It looks like an intimidating cast of characters to a parent who is new to this process. Don’t be fooled. As the parent, regardless of “who knows what”, you have more power than everyone in that meeting. They never tell you that, though. Even if they don’t intend for it to be so, it is normally extremely daunting to parents and they tend to just trust the committee for that reason. I’m here to tell you the unspoken truths so that you don’t all trap.

Assuming the FIE determines that your child does, in fact, have dyslexia, make sure that the word is used. Just listing a Specific Learning Disability in reading is not sufficient. Those words CAN be used, as long as shortly after the characteristics exhibited are listed it says dyslexia. Trust me. This is important. The exact words will mean that many state specific dyslexia laws will then come into play. Many states then line out that the school must provide evidence-based, multisensory reading intervention. Don’t assume that your school KNOWS your state’s specific legislation. If they fail to provide this, you have a leg to stand in order to get what you need.

Your child’s new IEP, among many other things, will now designate his or her specific diagnosis, targeted accommodations and the amount of time allotted weekly or monthly to them in which they will receive targeted intervention. I won’t even start to talk about terms like Least Restrictive Environment (LRE), Assistive Technology (AT), or Free And Appropriate Public Education (FAPE). All super important terms, but again, those are for another blog. This one is just SPED 101…. And that means Special Education 101.

This is where it gets fun….expressing your opinion as a parent. In an ideal world, you walk into the meeting, love everyone there, feel that the team is choosing your child’s interests- regardless of financial implications – above their own, and you agree with the testing results, educational goals, servicing plans, and accommodations. AWESOME! Hate to break it to you, but this is OFTEN not the case. In fact, this is more frequently the case than you realize, but most parents hold their tongue and choose to go the “wait and see” route since they don’t know their rights and assume they just “don’t know anything.”

Guess what? Mama and Daddy Gut are a HUGE thing. Deep down, if you don’t agree with the testing results or what the school is proposing for services…or anything in his HUGE LEGAL DOCUMENT, don’t be scared to speak up and JUST SAY NO! Remember early in this blog when I told you that the parents have more power the collective other side of the table? That is still true 3 paragraphs later.

How do you just say no? DO NOT SIGN! Let me say that again… DO NOT SIGN!! As with most legal documents, if it does not have your signature, it is not a living and breathing entity. It is only as valuable as the paper it is printed on. And once your child is established in “the system” as a Special Education student, the school is going to do most everything that they can to “close” that document so that they can be in compliance with the state.

And this part is HUGE: if you disagree with the Full Individual Evaluation (F.I.E.) that the school completed, by law you have the right to an Outside Evaluation for FREE!! As in, an impartial, third party evaluator!! Do not miss your chance at this by signing the initial ARD paperwork since you are scared of the school representatives!! Trust me, it happens all the time…

What happens next? All decisions tabled until you guys hold ANOTHER meeting in which you try to come to a resolution. It means that the school meanwhile will be trying to come up with solutions to pacify you all by consulting with the big guns. I will warn you that schools typically never immediately hand over the keys to the castle. This could be a PROCESS, but typically by the 3rd meeting, a resolution happens. My best advice if you don’t agree first meeting? Bring in an advocate to help speed the process along!!

But don’t just take my word on it, study up the Individuals with Disabilities Education Act (I.D.E.A.)…more acronyms. Also, most of this is lined out in the Procedural Safeguards Handbook that you tossed into the junk mail pile!! Here are links to both.

https://www2.ed.gov/policy/speced/leg/idea/idea.pdf

https://sites.ed.gov/idea/files/modelform_Procedural_Safeguards_June_2009.pdf

I am also always here to help coach parents through what to do and how to do it. Every child with dyslexia deserves the shot at the same educational experience as all of their peers REGARDLESS of what state you reside in.

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    Megan Pinchback
    info@dyslexiaondemand.com
    Megan Pinchback is the founder and owner of Dyslexia on Demand and a Certified Academic Language Therapist (CALT). She is also the co-host of the Don't Call on Me Podcast, a national speaker on dyslexia, social media educator and advocate, mom of five, and grandma to one. Through her work, she is passionate about helping families better understand dyslexia, access evidence-based support, and feel less alone in the journey.
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    I cannot speak highly enough about Dyslexia on Demand and the impact it has had on our son, Tripp. I want to share our story because I believe it’s proof of what’s possible when the right people come alongside your child. This past spring, during a parent-teacher conference following his IOWA test results, I sat in a room with administrators and faculty as they explained—quite frankly—how much of a “problem” Tripp was perceived to be. At the time, he was being bullied by the principal’s son, and I had voiced strong concerns about the lack of structure, discipline, curriculum issues, and troubling social dynamics. I could see Tripp declining emotionally, mentally, and academically. Things had reached a point where, one day in the carpool line, he jumped out of the car and ran down the street screaming that he wasn’t going back to school. The campus police officer and school counselor became involved—but even then, the school still labeled him as the problem. I left that spring meeting with a heavy heart and a clear conviction: it was time to pull both of our children out of the school. We didn’t have a plan yet, but I knew in my gut that I could give them better than what they were receiving at the so-called “best” private school in our small town. I remember crying in the car afterward and sending Megan an emotional, long-winded email—much like this one—feeling like I had somehow failed my son. Fast forward to today, and I want to share something that still gives me chills: Tripp’s test results from Liberty University Online Academy now show that not only is he working at grade level—he is at the very top of his class. His confidence is unmistakable, and his light is back. From the deepest place in my mama heart, thank you. Partnering with Dyslexia on Demand, and with Mrs. Suzanne specifically, has been one of the greatest blessings on this journey. Their work is truly changing lives—and I have the proof, right here in my thriving boy.
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    Dyslexia on Demand and our therapist Elizabeth are amazing. My son needs fairly significant support. I imagine it could be easy to feel that he is too difficult to serve given his struggles with language and attention. But Elizabeth has never wavered. I sense she's just as committed to his success as I am, and it feels like such a relief to finally have that kind of partner. She has had a tremendous impact on our family by giving us greater hope for our son's future. My appreciation for her could never be overstated.
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    Our daughter,Emersyn, has been with Dyslexia on Demand for a couple years now! We are so pleased with all the services they provide! She has had two therapists and both have been knowledgeable,patient,helpful,and kind. They see her! The curriculum is very comprehensive! Emersyn has gained so much confidence in reading and spelling! We look forward to her future progress with Dyslexia on Demand! Thank you Dyslexia on Demand!
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    Dyslexia on Demand has been such a blessing for our little girl! Since starting this 2yr course which she will be finishing in a year in half- we went from not remembering site words or barely remembering sounds of letters and decoding to reading past a 3rd grade level! This has been such a treat to watch! Are therapist is like being part of our little family
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    Dyslexia on Demand has been absolutely life-changing for my daughter. Before we found them, reading felt overwhelming and discouraging for her, but now she is growing in confidence every week. The one-on-one support and specialized approach have truly made all the difference. Her tutor is patient, encouraging, and really understands how to meet her where she is. Not only has her reading improved, but her overall confidence.
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    My 9 year old daughter started Dyselxia on Demand in June 2 and this is the only intervention we have constantly seen growth with since being diagnosed with dyslexia. We immediately saw growth in fluency, ability to access curriculum and writing. Her confidence is building and we are finding her reading for pleasure which has been so heartweraring. A CALT, using a research based program is exactly what she needed. This was the answer to our prayers and we are excited to see her continue to grow! We have worked with 2 CALT's and they have both been engaging, positive, caring and great communicators.
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    My friend, whose SIL works for DOD, recommended the company. And I'm so grateful! Reasonably priced and my daughter's reading has astronomically improved - she's reading much better than I had ever expected after having started this past summer! She loves her therapist and she's spontaneously reading on her own with significantly improved fluency. I'm no longer worried about her confidence; her spelling as improved. I'm hoping to continue past her therapy so her reading continues to strengthen to its fullest capacity.
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    We’ve had such a wonderful experience with Dyslexia on Demand. My son has struggled with reading for years, but since starting with his instructor, his reading skills have improved dramatically. Even more importantly, his confidence has grown so much. He no longer gets discouraged when reading and is actually starting to enjoy it. The patience, knowledge, and encouragement provided have made all the difference. I am so grateful for the support they’ve given our family and highly recommend them to anyone whose child is struggling with reading or dyslexia.
    Kristin Hasty
    11 months ago
    Having a child with a learning difference can sometimes be difficult to navigate! Unfortunately kids don't come with a manual and definitely not children that learn "outside of the norm". Our son went to a school for kids with learning differences and after 5 years we weren't convinced he would ever read on grade level, so by the time we found DoD we were desperate. We met with Megan and she settled our mind that there was a therapist that could meet our teenage son where he was and with time and effort he would read! She paired us with a therapist that had experience working with older, maybe a little more resistant children. We love Brooke! Easton loves Brooke and he really, truly looks forward to their sessions together. Thank you so much to all of the staff at DoD and a special shoutout to our therapist, Brooke. Easons future is looking bright!
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    11 months ago
    This dyslexia program is the best of the best! We love our CALT, Lauren B.! My daughter was slow going then it clicked about 9 months in (so keep at it, trust the process)! I highly recommend Dyslexia on Demand!!
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    11 months ago
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    This program is the best of the best! We love our CALT, Lauren! My daughter was slow going then it clicked about 9 months in (so keep at it, trust the process)! I highly recommend Dyslexia on Demand!!
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    11 months ago
    My daughter has had a tutor through Dyslexia on Demand for over 2 years and it was the best decision we ever made. Lisa, her tutor, is patient, accommodating to our schedule and really wants to see my daughter succeed. AMAZING COMPANY!
    Dimple Amin
    11 months ago
    My son has been doing the DOD program for 4 months now. I am impressed by how thorough the program is. The whole team is dedicated to informing and supporting both parents and their children. Our tutor is awesome! She has over 30 years of experience and is great with my son. She is also flexible with our schedule. The whole program takes a couple years on average, but for the support it offers children who would otherwise spend their school years struggling, it is well worth it. I have already seen more confidence in my son. I am glad this program offers highly qualified dyslexia tutors that we would otherwise not have access to in our area.
    We have been using Dyslexia on Demand since March of this year (it is now September) and my son's spelling has improved dramatically. Not only is he better able to articulate the spelling rules, but he is increasingly more confident in attempting to spell while writing, dramatically improving his writing abilities. Our tutor has been amazing, dealing with low confidence, occasional tricky behaviors, all the while maintaining a positive, bright attitude and making sessions engaging and fun. I'm so glad I found Dyslexia on Demand!
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    We HIGHLY recommend DOD! Megan and her team are absolutely a joy to work with! They listen and truly want what is best for your child which is all us parents want at the end of the day! Thank you DOD!
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