Parent Advocacy During COVID

Unchartered Territory? You can say that again! COVID-19 has thrust a whole new world of setbacks, and possibilities, on our entire nation and this world. As much as we want to find the silver lining of this global pandemic, it is an understatement to say that managing our special needs students’ education from home has been an extreme challenge. Many parents have been forced to manage their children’s instruction from home while also balancing their work and other responsibilities. For many parents, it has thrust them into the sobering reality of their child’s academic struggles. It has brought to light the severe need for dyslexic accommodations for virtual learning, which as typically, non-existent.

The good news is that this huge “pivot point” for our nation has forced schools, districts, and states to rethink education! As we are forced into changing the way in which we operate, we are opening up more and more possibilities for our future. Unfortunately, along with any pioneering which has occurred in history, those who typically lose are the guinea pigs. As we learn more, we strengthen, but it generally takes more and more people being the squeaky wheel and making their needs heard.

As a parent with a child with dyslexia, this is NOT the time to sit on your laurels and wait for the school to provide your child what they need in the virtual education environment. Regardless of the anomaly of a global pandemic, federal law still requires schools to provide an appropriate education for children with an IEP or a 504 plan. This includes the accommodations they were receiving during face to face, classroom instruction. They are NO federal waivers to the Individual with Disabilities Acts (IDEA) or Section 504 of the Rehabilitation Act of 1973. What this means is that all services lined out in a students’ IEP must still be upheld regardless of the classroom setting.

If your child is currently receiving his or her services in any abbreviated manner than what is defined in their Individual Education Plan (IEP), you have a very solid leg to stand on and you have every right to speak up! Never be afraid to speak up as an advocate for your child. Parents of children under the special education umbrella have many more rights than they ever imagined, and they are equally intact now as they were in February 2020. Open dialogue should be occurring with your child’s school in order to ensure their IEP is still intact in a virtual environment, regardless of the challenge the school faces in delivering the details.

In case you were not aware, Congress passed the Coronavirus Aid, Relief, and Economic Stimulus (CARES) Act, allocating around $31 billion to states and school districts to help soften the challenges of the COVID in the educational arena. States and districts have flexibility on how they use this funding, and the details of how to allocate these funds are not outlined. Your voice matters more than ever to ensure those funds are used appropriately and your child’s support funds are distributed equitably.

Students with learning disabilities and attention issues need more individualized attention and specialized support that their peers without disabilities to meet grade level standards. Do not be scared to approach your administration and ask how they are allocating their CARE Funds. Interventionists are a great use of the monies so that more bodies are present to assist in directly targeting special education and 504 students for the more individualized instructional needs.

Lastly, don’t forget that data is one of your most powerful tools in order to gain the services your child needs. Although we want to trust all schools and teachers have our children’s best interest at heart, we always need to remember that parents are also a key critical part of the educational team. Virtual learning is a great opportunity to also collect as much data as possible to report how your child is faring in the new learning environment. When virtual learning first began, it was often a sobering moment for may parents as they learned the true deficit their child was in versus solely relying on the word of their teacher. Collect your own data, anecdotal comments all the way through to hard numbers, in order to prove whether your kiddo is receiving the proper combination of services they need to experience success. This can help you either feel confident in staying the course and or effectively advocate for future services that meet your students needs. You can also gain a better understanding of how schools collect and use data going forward with the info you collect in just a few minutes each week.

For more information on this topic, visit https://www.ncld.org/wp-content/uploads/2020/06/2020-NCLD-Parent-Advocacy-Toolkit_v2.pdf

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    Posted by
    Megan Pinchback
    info@dyslexiaondemand.com
    Megan Pinchback is the founder and owner of Dyslexia on Demand and a Certified Academic Language Therapist (CALT). She is also the co-host of the Don't Call on Me Podcast, a national speaker on dyslexia, social media educator and advocate, mom of five, and grandma to one. Through her work, she is passionate about helping families better understand dyslexia, access evidence-based support, and feel less alone in the journey.
    Real People. Real Results. Real Progress.

    What Our Families & Partners Are Saying

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    Jennifer Carl
    1 week ago
    I cannot speak highly enough about Dyslexia on Demand and the impact it has had on our son, Tripp. I want to share our story because I believe it’s proof of what’s possible when the right people come alongside your child. This past spring, during a parent-teacher conference following his IOWA test results, I sat in a room with administrators and faculty as they explained—quite frankly—how much of a “problem” Tripp was perceived to be. At the time, he was being bullied by the principal’s son, and I had voiced strong concerns about the lack of structure, discipline, curriculum issues, and troubling social dynamics. I could see Tripp declining emotionally, mentally, and academically. Things had reached a point where, one day in the carpool line, he jumped out of the car and ran down the street screaming that he wasn’t going back to school. The campus police officer and school counselor became involved—but even then, the school still labeled him as the problem. I left that spring meeting with a heavy heart and a clear conviction: it was time to pull both of our children out of the school. We didn’t have a plan yet, but I knew in my gut that I could give them better than what they were receiving at the so-called “best” private school in our small town. I remember crying in the car afterward and sending Megan an emotional, long-winded email—much like this one—feeling like I had somehow failed my son. Fast forward to today, and I want to share something that still gives me chills: Tripp’s test results from Liberty University Online Academy now show that not only is he working at grade level—he is at the very top of his class. His confidence is unmistakable, and his light is back. From the deepest place in my mama heart, thank you. Partnering with Dyslexia on Demand, and with Mrs. Suzanne specifically, has been one of the greatest blessings on this journey. Their work is truly changing lives—and I have the proof, right here in my thriving boy.
    sara corder
    3 weeks ago
    Amity is amazing at keeping our 3rd grader engaged in the program and is always accommodating when needed. It has been refreshing to feel supported and not judged during times when our daughter is experiencing cognitive overload from school testing and then comes home to do more work. Amity clearly understands neurodivergent children and students with disabilities, and how their brains work. I especially appreciate her warm and gentle demeanor when our child is off task and needs redirection. There have even been times when I started to step in to encourage my child to participate, only to realize that Amity already had it handled. That level of confidence, patience, and skill is something our previous provider was lacking. I am so excited that my child can participate in therapy four times a week for an hour each session. This would have been beyond unmanageable previously. Amity is a fabulous fit, and so is your program. Everything flows so nicely.
    Abril Perea
    1 month ago
    “Watching Joseph grow through Dyslexia On Demand has been nothing short of life changing for our family. What once felt overwhelming now feels full of possibility because of the support and guidance they provide. They have helped my son build confidence, strength, and belief in himself as a learner. As parents, we are deeply grateful for the difference Dyslexia Online has made in Joseph’s life.” Thank you Abril 😀
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    We are only 2.5 months into my daughter’s Dyslexia on Demand program, and we are already seeing improvements. We opted for the group therapy lessons, and they have been great. She absolutely loves her sweet teacher, Ms. Heather, and looks forward to seeing her each week. We’ve noticed she is gaining much more confidence in her reading and is starting to truly enjoy it. I can’t wait to see what the future holds for her as she continues with the program.
    Janell Weaver
    3 months ago
    My learner never had access to structured literacy before. Dyslexia on Demand is literally changing the trajectory of their life by helping them become a reader. Edited to add- Dyslexia on Demand and our therapist Elizabeth are amazing. My son needs fairly significant support. I imagine it could be easy to feel that he is too difficult to serve given his struggles with language and attention. But Elizabeth has never wavered. I sense she's just as committed to his success as I am, and it feels like such a relief to finally have that kind of partner. She has had a tremendous impact on our family by giving us greater hope for our son's future. My appreciation for her could never be overstated.
    Janell Weaver
    3 months ago
    recommends
    Dyslexia on Demand and our therapist Elizabeth are amazing. My son needs fairly significant support. I imagine it could be easy to feel that he is too difficult to serve given his struggles with language and attention. But Elizabeth has never wavered. I sense she's just as committed to his success as I am, and it feels like such a relief to finally have that kind of partner. She has had a tremendous impact on our family by giving us greater hope for our son's future. My appreciation for her could never be overstated.
    Torrie Guerrero
    7 months ago
    Our daughter,Emersyn, has been with Dyslexia on Demand for a couple years now! We are so pleased with all the services they provide! She has had two therapists and both have been knowledgeable,patient,helpful,and kind. They see her! The curriculum is very comprehensive! Emersyn has gained so much confidence in reading and spelling! We look forward to her future progress with Dyslexia on Demand! Thank you Dyslexia on Demand!
    Esmeralda Esquivel
    7 months ago
    Amazing Amazing ultimate best online support for your brilliant dyslexic child. We are so greatful for finding this great support and learning avenue ❤️
    Nicole Hendricks
    7 months ago
    Two of my children receive therapy from Dyslexia on Demand. Both are thriving and making incredible progress! My son has been working with Brooke for less than a year and has grown in his reading skills and his confidence! His change of heart towards reading and learning has been a beautiful transition to watch and has brought me peace of mind and relief watching him get on the right track and receive the support he needed. Most extraordinarily though, my 11 year old daughter was diagnosed with dyslexia at age 7 and has struggled so much through the years. She has undergone intensive therapies and even attended a dyslexic private school for a few years, where she received specialized instruction and one-on-one therapy daily. Even after years of therapy and specialized education, she started 5th grade, last year, with a 3.2 reading level. A year later, her STAR testing showed she was starting 6th grade with a 7.8 reading level! Dyslexia on Demand and her provider, Kim, have so much to do with her progress, confidence and success. To watch that gap finally close and to witness my child read confidently is a joy I can’t describe and has been worth every investment of time and resources! I can not adequately describe the impact Dyslexia on Demand has had on our lives, but to put it simply, I am so genuinely impressed, grateful and thankful!
    Beth Thomas
    8 months ago
    I can't speak highly enough of Dyslexia On Demand - from my first conversation with Megan I felt an understanding of everything we had been dealing with through the years. She was able to quickly help me understand what my child needed and what we needed to do. My daughter is in high school and at first didn't want to think about therapy, but she loves her therapist, Suzanne. She is always ready for her session which I think speaks volumes and is continuing to build her confidence. We are excited to see her continued growth through the program.
    Tyler Watt
    8 months ago
    Dyslexia on Demand has been such a blessing for our little girl! Since starting this 2yr course which she will be finishing in a year in half- we went from not remembering site words or barely remembering sounds of letters and decoding to reading past a 3rd grade level! This has been such a treat to watch! Are therapist is like being part of our little family
    Jinni Henry
    8 months ago
    Dyslexia on Demand has been absolutely life-changing for my daughter. Before we found them, reading felt overwhelming and discouraging for her, but now she is growing in confidence every week. The one-on-one support and specialized approach have truly made all the difference. Her tutor is patient, encouraging, and really understands how to meet her where she is. Not only has her reading improved, but her overall confidence.
    Stephanie Garrido
    8 months ago
    My 9 year old daughter started Dyselxia on Demand in June 2 and this is the only intervention we have constantly seen growth with since being diagnosed with dyslexia. We immediately saw growth in fluency, ability to access curriculum and writing. Her confidence is building and we are finding her reading for pleasure which has been so heartweraring. A CALT, using a research based program is exactly what she needed. This was the answer to our prayers and we are excited to see her continue to grow! We have worked with 2 CALT's and they have both been engaging, positive, caring and great communicators.
    Hun Epps
    8 months ago
    My friend, whose SIL works for DOD, recommended the company. And I'm so grateful! Reasonably priced and my daughter's reading has astronomically improved - she's reading much better than I had ever expected after having started this past summer! She loves her therapist and she's spontaneously reading on her own with significantly improved fluency. I'm no longer worried about her confidence; her spelling as improved. I'm hoping to continue past her therapy so her reading continues to strengthen to its fullest capacity.
    Heather Adams
    8 months ago
    We’ve had such a wonderful experience with Dyslexia on Demand. My son has struggled with reading for years, but since starting with his instructor, his reading skills have improved dramatically. Even more importantly, his confidence has grown so much. He no longer gets discouraged when reading and is actually starting to enjoy it. The patience, knowledge, and encouragement provided have made all the difference. I am so grateful for the support they’ve given our family and highly recommend them to anyone whose child is struggling with reading or dyslexia.
    Kristin Hasty
    8 months ago
    Having a child with a learning difference can sometimes be difficult to navigate! Unfortunately kids don't come with a manual and definitely not children that learn "outside of the norm". Our son went to a school for kids with learning differences and after 5 years we weren't convinced he would ever read on grade level, so by the time we found DoD we were desperate. We met with Megan and she settled our mind that there was a therapist that could meet our teenage son where he was and with time and effort he would read! She paired us with a therapist that had experience working with older, maybe a little more resistant children. We love Brooke! Easton loves Brooke and he really, truly looks forward to their sessions together. Thank you so much to all of the staff at DoD and a special shoutout to our therapist, Brooke. Easons future is looking bright!
    Alisha Brown
    8 months ago
    This dyslexia program is the best of the best! We love our CALT, Lauren B.! My daughter was slow going then it clicked about 9 months in (so keep at it, trust the process)! I highly recommend Dyslexia on Demand!!
    Alisha Brown
    8 months ago
    recommends
    This program is the best of the best! We love our CALT, Lauren! My daughter was slow going then it clicked about 9 months in (so keep at it, trust the process)! I highly recommend Dyslexia on Demand!!
    Holly Moore
    8 months ago
    My daughter has had a tutor through Dyslexia on Demand for over 2 years and it was the best decision we ever made. Lisa, her tutor, is patient, accommodating to our schedule and really wants to see my daughter succeed. AMAZING COMPANY!
    Dimple Amin
    8 months ago
    My son has been doing the DOD program for 4 months now. I am impressed by how thorough the program is. The whole team is dedicated to informing and supporting both parents and their children. Our tutor is awesome! She has over 30 years of experience and is great with my son. She is also flexible with our schedule. The whole program takes a couple years on average, but for the support it offers children who would otherwise spend their school years struggling, it is well worth it. I have already seen more confidence in my son. I am glad this program offers highly qualified dyslexia tutors that we would otherwise not have access to in our area.
    We have been using Dyslexia on Demand since March of this year (it is now September) and my son's spelling has improved dramatically. Not only is he better able to articulate the spelling rules, but he is increasingly more confident in attempting to spell while writing, dramatically improving his writing abilities. Our tutor has been amazing, dealing with low confidence, occasional tricky behaviors, all the while maintaining a positive, bright attitude and making sessions engaging and fun. I'm so glad I found Dyslexia on Demand!
    recommends
    We HIGHLY recommend DOD! Megan and her team are absolutely a joy to work with! They listen and truly want what is best for your child which is all us parents want at the end of the day! Thank you DOD!
    Christine Bedre
    8 months ago
    We absolutely have loved DOD for our child! When the school to implement their dyslexia program we needed to do something on our own. Megan and her team were amazing with baseline testing. Honest conversations on what was needed to work with our child has helped them excel! We are beyond thankful!
    Jenny Milton
    8 months ago
    recommends
    The quality of instruction cannot be compared. I am a homeschool mom of 11 years. I have studied, read, trained, and explored all the options. Having professional help to conquer this mountain has been nothing but a life saver. We adore our certified academic language therapist. She is our son’s biggest cheerleader and we are so thankful we found her! The team with DOD is always there to support us. Our son, who was told would never read, is not only a reader…he is a writer! My heart will never be able to put on a page how much gratitude I have. Thank you ❤️
    Breanne Feudale
    8 months ago
    We started the DOD program over the summer, and we truly feel it’s important to continue. Our therapist has been amazing—she is extremely patient, knows exactly how to get our little one focused and ready for each session, and is flexible with rescheduling, which we really appreciate with a busy schedule. After about four months, we can already see a noticeable difference in our child’s reading and understanding of letters. This program has been such a positive and encouraging experience for our family!
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